
Tuesday, May 21, 2013
Tuesday Thoughts.

Friday, May 17, 2013
Austen: Year 2
This past year has been much more normal for us. We've encountered a few scares, but there have been no hospital stays. Thank. God.
Aus is still having her episode/seizure activity, but we have learned a few things. Over-stimulation obviously makes them more frequent so we monitor TV, busy atmospheres, flashing lights, & so on. Fever & pain make them worsen as well. These things are all very normal for seizure patients... Except no one can actually diagnose Austen as having seizures. Our doctor calls them "electrical discharges" & they aren't really sure what she's dealing with. Characteristically they're seizures...& that's the best way I can explain it. We've learned when we see an increase in activity that Austen has something going on. So far this year it's been stomach virus, teeth pain, & ear infections. It's her body's way of telling us things are off. As soon as we get her pain or infection under control things return to normal. We are so blessed that we typically only see a few seizures a day. In the neurology clinic we see so much stuff & it literally wants to make me drop to my knees then & there to thank God for our "problems"! About a month ago we went a whole week without a seizure!! We don't really know why..but I do know (even though it didn't last) I will praise God for that amazing, stress free week!
We've also learned some details about how Austen's condition (ACC) effects her specifically. It's different with every patient. Most not being nearly as blessed as she has been. In HER case she is cognitively on target. Just spend some time with the little whipper snapper. She's got it together ;) Her motor skills are where we see a delay. She is progressing beautifully... Just a little slower than most. Imagine trying to walk when the two sides of your brain aren't connected & they aren't working together to tell your body what to do. That's what Austen is overcoming. Thanks to therapy, practice with family, & many trying sessions with Mae Mae ;).. Austen is spoon feeding herself, transitioning from laying down to sitting up, attempting to pull up into standing, & taking steps. I know this may surprise some people because if you've seen Austen you never would've realized she couldn't do these things. She's so normal, and you really have to pay attention to see it. Austen doesn't talk much either. She has a few words that she'll say, and has pre-speech characteristics so we don't worry too much. Her motor skill delay contributes to that as well. Communicating has been a huge frustration! Remember that her logic is there. The sassy little 2-year old knows what she wants! She just can't tell you. That's when we turned to "signing". LIFE-SAVER! We still get mad at each other..sometimes I wanna pull my hair out..., but for the most part we've learned how to use signs to communicate. Our big goal this year is to WALK. Say a prayer for Aus! The 27 pound youngin is killing my back!
I often reference Austen as our miracle. If you don't know the beginning of Austen's story then you don't know this...We weren't given any hope for a normal life with her. She wasn't "supposed" to be able to do anything according to her MRI & neurologists. Her doctor still can't believe how she "continues to amaze". I love hearing that.
When I was pregnant we were building our house. One afternoon as we were burning a big trash pile the wind picked up a bit. It began blowing the flames up into our huge Magnolia tree. The Magnolia has been on the homestead property for years, and I was devastated at the though of losing it. I heard the crackling of the leaves & I just knew it wouldn't survive. That spring there weren't any blooms. The tree was still green but no flowers appeared. It was green though, and I was holding onto that. Austen was born that May, and the Magnolia tree was the least of my worries. The following spring I was at the homestead property preparing for Austen's first birthday party. Our house wasn't complete, but we were close. I was rushing around trying to set-up party tables when I spotted the bloom. I almost cried I was so happy. The Magnolia was back & the first new bloom was on Austen's first birthday. I have had a strong bond with that silly tree ever since. I know it sounds crazy, but I can identify. When we were told the news about Austen I felt like I had been "burned". As a new mom you have visions of how you think things are supposed to be. When it wasn't my idea of perfect I was crushed. Then I held my baby. She was perfect...God gave me a "Magnolia" after I had been "burned".
This is the second year of blooms since the fire...how fitting that we are celebrating Austen's second birthday.
I don't care how silly it may be. That tree & my little "Magnolia" will have my heart for eternity.
Soli Deo Gloria
Austen: Year 1
I can barely say this out loud without crying, but....We made it a year!
Thursday, May 16, 2013
Austen's Beginning
So after a 2 year sabbatical from this blog...I'm back. SOOOO much has happened since I wrote last. Obviously our baby girl was born, we got our new house built, & our life is beautiful.
My girl turns 2 tomorrow, and I wanted to post the letter I wrote shortly after she was born. This is part of the reason for the long blog break....besides just being a busy Mama. I want to be able to write. It's therapy for me, but it's also hard at times. So for those that want to know where Austen's story begins...this is it.
*******************
Austen's Birth (2011)
First of all Brad and I would like to thank all of you from the bottom
of our hearts.
You have prayed, you have visited, you have facebooked, you have
called & texted, we have been in your thoughts....and when we needed
it, you gave us our privacy.
We have haven't confided in many besides our immediate family. The
reason for this is not because we are trying to be secretive or hide
anything. It is simply because we didn't, and still don't know all the
details or aspects of the news we were given.
Last Sunday I was officially 41 weeks pregnant and had been begging to
be induced. Not because I was miserable, but simply because we were
ready to meet our sweet sweet Austen. Dr. Werner (who has been amazing
through all of this) agreed and my induction was scheduled for that
Sunday night. I called and called and called and there were no
rooms...everything was full. Dr. Werner advised me to just go into the
office on the following day (Monday) at 2...she said we would do an
ultrasound on Austen to make sure she was still good (as she had been
throughout my whole pregnancy) and then try to induce later that week.
So the ultrasound was done & we met with Dr, Werner. She expressed a
concern from the ultrsound. Austen had what appeared to be an enlarged
ventricle on the top of her head. Dr. Werner said that she wanted to
go ahead and induce me so we could get Austen out and run some tests
on her. After consulting with Shands it was decided that in order to
save Austen some stress I would have a c-section at shands so that we
would not have to be separated from her once she was born and sent for
further testing. I was immediately transferred. After several hours, I
was discharged....because again there were no beds! We stayed with
friends in Gainesville and I went back the next morning for a
scheduled c-section. Finally around 6:30pm I was taken in for my
surgery. Austen was born a healthy 8lbs 11oz. She is beautiful!! After
several pictures, Brad & Austen were taken down to the nursery. From
there Austen was taken in for an MRI of her brain. I was taken to
recovery and around 11pm I was finally able to put my hands on my
little girl & we were taken to our room. 2 hours after that radiology
staff showed up and said that Austen would need to be transferred to
NICU to be monitored. The MRI had come back abnormal. The resident
doctor didn't know details he basically knew that Austen had to be
monitored. I asked if we could have a minute alone with her. Shortly
after, Brad took Austen down to NICU, and we didn't sleep....We prayed
and we cried.
The next few days were basically a whirlwind of doctors....we met with
neurology staff, radiology staff, & geneticists, along with all the
usual staff you encounter during a hospital stay.....Brad & I have
decided to share what we know through this mass letter. Some of you we
are very close to, some of you we know casually, & some of you may get
this and we barely know you. That doesn't matter to us. What matters
is that everyone gets the whole story and everyone gets the same
information.
Here is what we know....
Austen's primary problem is that her brain was formed without a corpus
callosum. I don't really expect that many of you know exactly what
that is...We aren't even sure exactly what that is. We do know that in
some cases people are missing that part of their brain, and they may
not even know it. They may function normally, get in a car accident at
30 years old, go in to have a brain scan and discover they don't have
a corpus callosum. In other cases it can affect the brain in many
different ways. None of which can be foreseen.
Austen also has a cyst in her brain that is filled with fluid. The
cyst hasn't changed in size & isn't affecting anything as of now. It
will probably be one of those things that will be monitored.
Austen's third and final abnormality is that she has a extra layer of
grey brain matter. This is another one of those things...no one knows
how it may effect Austen...if at all.
Now you should understand why we havn't shared much. We have no idea
how these abnormalities might effect our baby. The doctors say that
Austen still had so much good brain that no one really knows. We are
basically living day to day...and honestly aren't we all living day to
day anyways??
As of now Austen is amazing. She was in NICU but no one could figure
out why....she is functioning exactly how any baby should be...Her
hearing is normal, her eyesight is normal...her vitals are perfect.
She is beautiful!!
In fact....if I hadn't gone over my due date, or if I had been induced
Sunday night I wouldn't have had that last ultrasound that showed up
abnormal & we wouldn't even know Austen had any problems. We would've
brought home what we knew to be a completely normal baby. So even
though there's a part of me that wants to be angry with God....clearly
he was watching out for us....and we also know that we can't get
through this without HIM.
Brad & I are also doing well. We are in this together, and we keeping
each other strong. I won't lie...I usually make fun of those people
who get all mushy about their husbands on facebook...but
seriously....Brad has been beyond amazing through all of this, and I
couldn't do it without him. We know that this baby couldn't have been
given to a better family....and when I say family...I mean that Austen
has an incredible support system. Grandparents, aunts, uncles
included. She is dearly loved.
A nurse approached me in NICU and told me how "sorry" she was. I know
that people don't know what to say in these situations..and everyone
means well, but we are not sorry. We love our little angel baby with
all of our hearts. She is the best thing that has ever happened to us.
We appreciate your concern for us & we covet your prayers! Austen is
already a little miracle.
Feel free to share this with anyone who may be interested in the
beginning of our baby girls amazing story!
With all of our love,
Brad, Beth, & Austen
Thursday, December 16, 2010
Sugar & Spice!

Sunday, December 12, 2010
Welcome to my Crazy Life!

Exactly 4 months...& 5 lbs heavier...for now! lol

Saturday, November 13, 2010
Jona-bear is 2!


Saturday, September 25, 2010
Steinhatchee & Island Life



Tuesday, August 31, 2010
Favorite Things - My Havi's

Monday, August 30, 2010
Policemen's Ball
Sunday, August 29, 2010
My Momma is soooo HOT
For dessert is was ice cream cake from Dairy Queen!
Thursday, August 26, 2010
Favorite Things - Spring Water is for Swimming!
First up is Smartwater.
Friday, August 13, 2010
10 Beauty Products I Die For...











Monday, August 9, 2010
28
~ Woke up at 4;15am to make dear husband's lunch. Dear husband wishes me a Happy Birthday, and calls me a cougar (i'm 2 years older than him). I say thanks & smile because on the inside I know that everyone thinks i'm younger than he is ;)

~ Check email. Dear parents sent me a gift card to Cloud 9 Spa!!!!!!!
~ Thanked Dear parents & scheduled spa day.
~ 10:30-ish a local florist shows up with 4 deliveries! Pictures contain details :)

From Momma & Daddy

From Mr. Bo & Mrs. Alicia


~ Had lunch with the family at Sub Shop.

~ At 3:00pm, dear co-workers throw a birthday party for me! Chips & dip, chocolate cake (by Linda mmm mmm), drinks, and gifts :)

~ Linda gave me "Twilight Woods" products which are on my top 15 list of faves. Cathy gave me my tag renewal LOL! She doesn't want me to get arrested...otherwise I still wouldn't have it, and she knows it. Sheila surprised me with Arbonne Bath salts which I adore, and Mrs. Frances gave me the cutest notepad and pen. Love you girls!
~ More gifts :) ....Brad's parents gave me a digital photo frame. LOVE! Johnny & Chels gave me a Brown Lantern gift card....which i've already used!
~ After work Brad & I went to the Texas Roadhouse with Johnny & Chelsea. I heart Texas Roadhouse. It has such sentimental meaning....first date with Bradley, dinner there after we got engaged. and it's where I fell in love with.....rolls & cinnamon butter ;)
~ I Loved this Birthday!!! 28 has been good to me so far.
The next night we had a birthday party for Daddy (his b-day was Aug 5th) & I at Patrick and January's house. We ate shrimp & grits, and had a chocolate masterpiece that Beka made for dessert. J & P gave me a bracelet from Hawaii that I love. Thanks guys!
Friday, July 16, 2010
Kole & Kale - July 16, 2010
Tuesday, July 6, 2010
Boogity, Boogity, Boogity!

Saturday, June 26, 2010
Day 15 - Bex is 21!


When we checked in there was a surprise for Beka at the front desk....Did I mention she has 2 amazing sisters? ;)


Then it was time to make ourselves beautiful for dinner and dancing....We also had a short photo session....
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Katie & January arrived....late....as expected....and whisked us off to dinner. We had reservations at "Shout". They have any kind of food you could possibly want...sushi, seafood, steaks, and brick oven pizza. It was delicious, but weird. Our waiter..tress called everyone "Boo" which was entertaining, some huge manly looking guy told Katie her shorts were "presh" (which i'm assuming means precious), and some girl told us if we came back later it would be more "crowded-er". We decided we didn't want to be there when it got "crowded-er" so we left.
Later we went to Havana...which January kept calling "Havana Nights". She convinced me that was the name of the place, so when I said it to the front desk guy i'm sure he thought I was really dumb. Thanks for that January. Havana is a latin dance club, but they play regular music too. We danced until January & Jennifer thought their feet were gonna fall off, and then called it a night. It was an amazing weekend & the perfect end to our Wild West Tour!!

Friday, June 25, 2010
Days 12,13, & 14 - Hollywood with a Touch of Twang!
I left a piece of my heart in Nashville. I absolutely loved that town! I wanted to go home, get Brad, and immediately take another vacay back to Nashville! When we pulled into town I could hardly contain my excitement. Bek & Jenn aren't quite as "southern" as I am so of course I caught some crap ;), but i'm ok with that. We went down to Jack's BBQ to get some lunch....I've read some southern chick lit that talks about Jack's so I just had to go! It wasn't quite what I expected, but oh my word was it ever delicious!!
After lunch we went to hunt our campground. I loved our cabin in Nashville. It had a bathroom in it, and we didn't have to trudge to a bathhouse for every little thing. We checked in, and decided to be lazy :) We ordered out pizza for dinner, and then got our beauty sleep. There was a whole "country" town waiting for me so I had to rest up. The next morning we got up and found a Cracker Barrel. There's not a breakfast on this earth that beats their "Eggs-in-a-basket". It's heaven! Soooo it was breakfast then shopping. I picked up a few gifts for some friends, tried on insanely expensive cowboy boots, bought a little black dress, and then had an ice cream cone..What? It was really hot outside! After shopping we went back to the cabin to get ready for dinner. I was so excited :) 
